Mission and Vision of HAEi

Our Mission

HAEi is established to promote co-operation, co-ordination and information sharing between HAE Specialists and National HAE Patient Associations in order to promote and facilitate the availability of effective HAE (and other angioedema due to C1 inhibitor deficiency) diagnosis and management throughout the world.

Aims and Objectives

In support of its mission HAEi will focus on:

I. The development and support of National Member Organizations (NMOs) throughout the world.
II. The dissemination of information to NMOs, enhanced communication with medical professionals, appropriate decision makers and the medical industry.
III. The promotion of international guidelines for standards of care for HAE patients throughout the world to ensure every patient has access to timely diagnosis and effective care.
IV. The maintenance of an HAEI website to serve as an educational/informative online resource for the HAE global community.
V. The organization of international workshops for interaction among the entire HAE community - medical, scientific and patients.
VI. The promotion of scientific and clinical research to facilitate the development of treatments for C1-INH deficiencies.

News

Thu, 2013-05-16

Dyax HAE Allies℠ Awards Program Launches on Second Annual HAE Day
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Thu, 2013-05-16

Happy hae day :-)
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Wed, 2013-04-17

Pharming And Santarus Announce Submission Of Ruconest Biologics License Application To FDA
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Tue, 2013-04-16

CSL Behring Receives European Health Authorities’ Approval of Berinert® for Short-Term Prophylaxis in Adults and Children
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Wed, 2013-04-10

A global awareness day for a life-threatening condition

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Mon, 2013-02-25

Dyax Presents DX-2930 Data at the 2013 American Academy of Allergy, Asthma and Immunology Annual Meeting
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Newsletter Teaser ( In News Section on Homepage )

Newsletter

Make sure to stay updated. HAEi will keep you informed when you sign up for our newsletter.

Sign up for HAEi Newsletter and register at the same time.

Join our Facebook group - and follow HAEi on Twitter

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Events

Thu, 2013-05-23 12:00 - Sun, 2013-05-26 12:00

8th C1-Inhibitor Deficiency Workshop

Venue: Danubius Thermal Hotel Margitsziget, H-1133 Budapest, Hungary
Language: English

Hungary welcomes you to the 8th C1-Inhibitor Deficiency Workshop will be held in Budapest in 2013.

For more information please visit the website here

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Thu, 2013-05-16 (All day)

2013 hae day :-)

On 16 May 2013 patient organizations throughout the globe will hold events, meetings, and fundraisers to support the global awareness day hae day :-)

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Sat, 2013-05-04 09:00 - 16:00

Australasian 2013 Annual Patient Meeting

Venue: Rydges, South Bank, Brisbane, Queensland, Australia
Language: English

HAE Australasia Ltd is pleased to invite you to the patient organisation’s second patient meeting. The event will provide you with an opportunity to hear from HAE experts and to meet others who may share similar HAE experiences. It will also be a good opportunity to meet with the HAE Australasia board members and discuss how you could help spread awareness of HAE in Australia & New Zealand.

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Homepage Teaser 6, 2nd row right

HAE Global Community

Be part of the HAEi Community

HAEi is here to help you. Therefore we have created the HAEi Community that gives you all the bells and whistles you know from other social media (such as Facebook) and even a very sophisticated Forum, where you can discuss with fellow HAE patients and care givers. The only difference is - that here your information stays safe - and will only be shared with other HAE patients and care givers. If you are a HAE patient or directly related to a HAE patient we urge you to register today - and become an important member of our community

Help yourself and stay updated by registering already today - then you will be the first to know.....

Go to Registration page

Do you have Questions?
You can find answers on our FAQ-Page or
send us an e-mail to: info@haei.org
 or go to the contact form page

Experiencing browser problems?

Our website is working properly on most web browsers. However, we know that the site will not perform correctly on Microsoft Internet Explorer version 6 and earlier! So if you are using Internet Explorer from Microsoft please ensure that you have version 7 or higher!

See the video from the 2012 HAE Global Conference in Copenhagen

Click here

HAEDAYHAEDAYLook out for next hae day :-) on 16 May 2013


www.haeday.org