Mission and Vision of HAEi

Our Mission

HAEi is established to promote co-operation, co-ordination and information sharing between HAE Specialists and National HAE Patient Associations in order to promote and facilitate the availability of effective HAE (and other angioedema due to C1 inhibitor deficiency) diagnosis and management throughout the world.

Aims and Objectives

In support of its mission HAEi will focus on:

I. The development and support of National Member Organizations (NMOs) throughout the world.
II. The dissemination of information to NMOs, enhanced communication with medical professionals, appropriate decision makers and the medical industry.
III. The promotion of international guidelines for standards of care for HAE patients throughout the world to ensure every patient has access to timely diagnosis and effective care.
IV. The maintenance of an HAEI website to serve as an educational/informative online resource for the HAE global community.
V. The organization of international workshops for interaction among the entire HAE community - medical, scientific and patients.
VI. The promotion of scientific and clinical research to facilitate the development of treatments for C1-INH deficiencies.

News

Tue, 2012-02-14

Pharming And Transmedic Announce Distribution Agreement For Ruconest
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Fri, 2012-02-10

Pharming Announces Initiation Of A Pediatric Phase II Clinical Study With Ruconest
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Tue, 2012-02-07

ViroPharma Provides Update on Industrial Scale Supplement for Cinryze® (C1 Esterase Inhibitor [Human])
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Mon, 2012-02-06

U.S. Senate Declares May 16, 2012 as Hereditary Angioedema Awareness Day
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Tue, 2012-01-24

New Data Published On Ruconest's Effect On Blood Clotting Parameters During HAE Attacks

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Fri, 2012-01-13

Health Canada Grants Priority Review Status For New Drug Submission (NDS) For Cinryze™ (C1 Inhibitor [human])
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Newsletter Teaser ( In News Section on Homepage )

Newsletter

Make sure to stay updated. HAEi will keep you informed when you sign up for our newsletter.

Sign up for HAEi Newsletter and register at the same time.

Join our Facebook group - and follow HAEi on Twitter

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Events

Fri, 2012-05-18 08:00 - Sun, 2012-05-20 12:00

2012 HAE Global Conference

Venue:Scandic Hotel Sydhavnen, Copenhagen, Denmark
Language:English

HAE GLOBAL CONFERENCEHAE GLOBAL CONFERENCE

HAEi is delighted to invite patients, care givers, health care professionals and industry representatives to this biannual first true global conference, where this year's theme is "Advocacy and Access".

We have prepared some VERY ATTRACTIVE conference packages for all delegates.

We expect participation from all over the world.

Read more on the 2012 HAE Global Conference website

 

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Wed, 2012-05-16 00:01 - 23:59

2012 HAE Awareness Day

Venue: All over the World!
Language: All languages

HAEDAYHAEDAYPlease have a look at www.haeday.org for more information about this first ever dedicated awareness day for hereditary angioedema (HAE). Find inspiration for national/regional events as well as an overview of planned activities on the hae day website.

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Fri, 2012-03-02 08:00 - Tue, 2012-03-06 17:00

AAAAI 2012 Annual Meeting

Venue: Orange County Convention Center, Orlando, Florida, USA
Language: English

The AAAI Annual Meeting is the world's premier gathering of allergy and immunology experts. Attendees include clinicians, academicians, allied health professionals and others interested in allergic and immunologic disease.

The 2012 meeting will take place from March 2 - 6, in Orlando, Florida. We look forward to seeing you in Orlando. Read more about the conference here

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Homepage Teaser 6, 2nd row right

HAE Global Community

Be part of the HAEi Community

HAEi is here to help you. Therefore we have created the HAEi Community that gives you all the bells and whistles you know from other social media (such as Facebook) and even a very sophisticated Forum, where you can discuss with fellow HAE patients and care givers. The only difference is - that here your information stays safe - and will only be shared with other HAE patients and care givers. If you are a HAE patient or directly related to a HAE patient we urge you to register today - and become an important member of our community

Help yourself and stay updated by registering already today - then you will be the first to know.....

Go to Registration page

Do you have Questions?
You can find answers on our FAQ-Page or
send us an e-mail to: info@haei.org
 or go to the contact form page

Experiencing browser problems?

Our website is working properly on most web browsers. However, we know that the site will not perform correctly on Microsoft Internet Explorer version 6 and earlier! So if you are using Internet Explorer from Microsoft please ensure that you have version 7 or higher!

HAEi is a proud supporter of EURORDIS/NORD Rare Disease Day

RDD logoRDD logo

HAEDAYHAEDAYLook out for the first ever HAE Awareness Day on 16 May 2012


www.haeday.org