Overview

HAE - stands for Hereditary AngioEdema

Hereditary AngioEdema (HAE) is a rare genetic disorder. It is characterized by spontaneous and recurrent episodes of swelling (edema attacks) of the skin in different parts of the body, as well as in the airways and internal organs.(2,4)

Edema of the skin usually affects the extremities, the face, and the genitals. Patients suffering from this kind of edema often withdraw from their social lives because of the disfiguration, discomfort and pain these symptoms may cause.Almost all HAE patients suffer from bouts of severe abdominal pain, nausea, vomiting and diarrhea caused by swelling of the intestinal wall.(5-7)

Edema of the throat, nose or tongue is particularly dangerous and potentially life-threatening and can lead to obstruction of the airway passages.(4,8-10)

Although there is currently no known cure for HAE, it is possible to treat the symptoms associated with edema attacks.
HAE affects about 1 in 10,000 to 1 in 50,000 people worldwide.(2,11) Today approximately 5.000 - 10.000 patient are diagnosed in Europe. Experts believe that a lot of patients are still seeking the right diagnosis: although HAE is (in principle) easy to diagnose, it is frequently identified very late or not discovered at all. The reason HAE is often misdiagnosed is because the symptoms are similar to those of many other common conditions such as allergies or appendicitis. By the time it is diagnosed correctly, the patient has often been through a long lasting ordeal.

News

Wed, 2014-07-23

Recommended combination of Shire and AbbVie

Wed, 2014-07-23

Dyax Corp. Announces Publication of Scientific Data for DX-2930 in Peer-Reviewed Journals

Fri, 2014-07-18

Recommended combination of Shire and AbbVie

Fri, 2014-07-18

First Subcutaneous Treatment Now Available in Canada

Thu, 2014-07-17

FDA approves Ruconest for HAE treatment in the USA

Thu, 2014-07-10

July 2014 newsletter out now

Newsletter Teaser ( In News Section on Homepage )

Newsletter

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Events

Thu, 2014-11-06 09:00 - Mon, 2014-11-10 16:00

ACAAI - 2014 Annual Scientific Meeting

Venue: Georgia World Congress Convention Center, Atlanta, GA, United States of America
Language: English

Plan to join your colleagues at the 71st ACAAI Annual Scientific Meeting in Atlanta, Nov. 6-10. Broaden your expertise, enhance your practice management skills and improve patient care.

For more information please visit: ACAAI Annual Meeting 2014

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Fri, 2014-10-24 13:00 - Sun, 2014-10-26 12:30

International scientific conference on Expanding Boundaries of our HAE Knowledge

Venue: Bethesda Marriott, 5151 Pools Hill Road, Bethesda, MD 20814, USA
Language: English

This first international scientific meeting on HAE, sponsored by National Institutes of Health in conjunction with the US HAEA Angioedema Center at UCSD, will bring together experts in all types of angioedema, as well as clinical medicine to discuss the emerging basic science.

Read more about the conference here

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Wed, 2014-10-15 12:00 - Thu, 2014-10-16 13:00

Bradykinin Symposium

Venue: Kaiserin Friedrich-Haus, Lecture Hall, Robert-Koch-Platz 7, 10115 Berlin, Germany
Language: English

Welcome to this year's Bradykinin Symposium hosted by the Charité and icare on 15-16 October 2014 in Berlin. International experts in the field of bradykinin have been invited to discuss the role of bradykinin in present and in the future.

The symposium will be complemented by the Charité/UNEV/icare/GA²LEN Angioedema School on 16-17 October 2014.

For more information please visit: Bradykinin Symposium 2014

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HAE Global Community

Be part of the HAEi Community

HAEi is here to help you. Therefore we have created the HAEi Community that gives you all the bells and whistles you know from other social media (such as Facebook) and even a very sophisticated Forum, where you can discuss with fellow HAE patients and care givers. The only difference is - that here your information stays safe - and will only be shared with other HAE patients and care givers. If you are a HAE patient or directly related to a HAE patient we urge you to register today - and become an important member of our community

Help yourself and stay updated by registering already today - then you will be the first to know.....

Do you have Questions?
You can find answers on our FAQ-Page or
send us an e-mail to: info@haei.org
or go to the contact form page


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See the video from the 2012 HAE Global Conference in Copenhagen

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HAEDAYHAEDAYLook out for next hae day :-) on 16 May 2014


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