News

Fri, 2014-12-19
Last newsletter of 2014 out now

We have just issued the sixth 2014 edition of the HAEi newsletter.

We hope that you will be among the many readers of the HAEi newsletter ­- please download it as a pdf-document directly from http://www.haei.org/sites/default/files/public/201406_Newsletter.pdf.

As always, please let us know what you believe should be included in future newsletters and feel free to submit articles on any topics that you believe would be of interest to other readers.

Thu, 2014-12-18
BioCryst initiates OPuS-2: A clinical trial of BCX4161 in HAE-patients

BioCryst Pharmaceuticals, Inc. today announced that it has dosed the first patient in OPuS-2 (Oral ProphylaxiS-2), a blinded, randomized, placebo-controlled clinical trial of orally-administered BCX4161 in patients with HAE.

Thu, 2014-11-06
Salix Pharmaceuticals Reports 3Q2014 Results

Salix Pharmaceuticals, Ltd. has announced financial and operating results for the third quarter ended September 30, 2014.

Extracts from the report:

On July 16, 2014, the Food and Drug Administration (FDA) approved Ruconest for the treatment of acute angioedema attacks in adult and adolescent patients with HAE.

Thu, 2014-11-06
BioCryst Reports Third Quarter 2014 Financial Results

BioCryst Pharmaceuticals has announced financial results for the third quarter ended September 30, 2014.

Extracts from the report:

"The primary focus continues to be our oral kallikrein inhibitor program for HAE. Preparations are underway for our OPuS-2 clinical trial of BCX4161 and we expect to begin enrolling HAE patients before year end. We continue to make progress with our second generation HAE program and remain on track to enter Phase 1 clinical development in the second quarter of 2015," said Jon P. Stonehouse, President & CEO of BioCryst.

Wed, 2014-11-05
Pharming Confirms Milestone Payment From Salix Pharmaceuticals

Pharming Group NV has announced the receipt of a US$20 million milestone payment from Salix Pharmaceuticals. The milestone was paid according to the terms and conditions of the Ruconest commercialization agreement between Salix and Pharming.

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United We Stand Strong!

HAEi cares about you. We encourage patients to get organized - because "United We Stand Strong".

HAE International - Thumb 7HAE International - Thumb 7Become a National Member Organization (NMO). We are here to help you in founding a National Member Organization. Follow our step-by-step model. It doesn't have to be a difficult task creating the best foundation for patients in your country. Contact us for more information here


HAE International - Thumb 4HAE International - Thumb 4

Starting a National Patient Group (NPG). If you are interested in doing more around HAE - but don't feel that starting a full NMO is the right option here and now. You should maybe consider becoming a contact patient (NPG) for your country. Contact us here

Both NMO's and NPG's enjoy free membership of HAEi. Also we can help you host your country specific website under the global umbrella of HAEi.

Events

Thu, 2015-05-28 13:00 - Sun, 2015-05-31 14:00

9th C1 Inhibitor Deficiency Workshop

Venue: Danubius Thermal Hotel Margitsziget, Margitsziget, 1133 Budapest, Hungary
Language: English

It is our great pleasure to invite you to the 9th C1-INH Deficiency Workshop. This event has a history of many years, as well as its nature and objectives are familiar to many of us. Nevertheless, given the continued interest from first-time attendees, we would like to introduce the Workshop for them in brief, as follows.

This conference focuses on bradykinin-mediated angioedemas, and particularly on the types resulting from C1-inhibitor deficiency. The topics of this four-day long event cover a wide range of subjects.

Read more about the workshop here.

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Fri, 2015-02-20 10:00 - Tue, 2015-02-24 16:00

AAAAI - Annual Meeting 2015

Venue: Houston, TX, United States of America
Language: English

Mark your calendars and head to Houston, Texas for the premier event in allergy/immunology. You will be able to earn CME/CE, learn about cutting-edge research and enrich your networking connections at the 2015 AAAAI Annual Meeting, February 20-24.

For more information please visit: AAAAI 2015
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Sat, 2014-12-06 09:00 - Tue, 2014-12-09 15:00

WAO International Scientific Conference 2014

Venue: SulAmérica Convention Center, Av Paulo de Frontin, 1 - New City, Centro Rio de Janeiro - RJ, Brazil
Language: English

Advancing the borders of allergy: From treatment to prevention by targeting the environment, infections and the susceptible patient

We are delighted to welcome you to participate in the WAO International Scientific Conference 2014 (WISC 2014) and the XLI Annual Congress of the Brazilian Association of Allergy and Immunology (ASBAI) in Rio de Janeiro, Brazil, 6-9 December 2014.

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HAE Global Community

Be part of the HAEi Community

HAEi is here to help you. Therefore we have created the HAEi Community that gives you all the bells and whistles you know from other social media (such as Facebook) and even a very sophisticated Forum, where you can discuss with fellow HAE patients and care givers. The only difference is - that here your information stays safe - and will only be shared with other HAE patients and care givers. If you are a HAE patient or directly related to a HAE patient we urge you to register today - and become an important member of our community

Help yourself and stay updated by registering already today - then you will be the first to know.....

Do you have Questions?
You can find answers on our FAQ-Page or
send us an e-mail to: info@haei.org
or go to the contact form page


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See the video from the 2012 HAE Global Conference in Copenhagen

Click here


HAEDAYHAEDAYLook out for next hae day :-) on 16 May 2014


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