News

Wed, 2012-05-16
Worldwide Recognition of hae day :-) Unites and Empowers the Global Hereditary Angioedema Community

- National Patient Advocacy Organizations Support People Living with Rare Swelling Disorder in First Global HAE Awareness Day -

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Thu, 2012-05-03
CSL Behring Initiates Study of Subcutaneous Administration of C1-esterase Inhibitor in Patients with Hereditary Angioedema

- Phase I/II study to establish safety and clinical pharmacology with various doses of subcutaneous formulation of human C1-esterase inhibitor -

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Wed, 2012-04-11
Dyax Launches Hereditary Angioedema Genetic Counseling Program to Educate Patients and Family Members about Disease and Inheritance

BURLINGTON, Mass.--(BUSINESS WIRE)-- Dyax Corp. (NASDAQ: DYAX) the manufacturer of KALBITOR® (ecallantide) for the treatment of acute attacks of hereditary angioedema (HAE) in patients 16 years of age and older, has announced the launch of its HAE genetic counseling program. The program, which is available to all members of the HAE community, provides diagnosed HAE patients and their family members with a free counseling session.

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Mon, 2012-04-09
US HAEA and its Medical Advisory Board Announce Ground-Breaking Scientific Workshop on Angioedema

- First International Workshop on Type III HAE Takes Place -

April 9, 2012: The US Hereditary Angioedema Association (US HAEA) and its Medical Advisory Board are sponsoring a ground-breaking scientific workshop that will focus on non-allergic, familial swelling in patients with normal levels of the plasma protein, C1 inhibitor. This condition is currently referred to as Type III HAE. The workshop will be held on April 28, 2012 in Boston, MA.

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Thu, 2012-03-29
ViroPharma Launches Hereditary Angioedema Facebook App to Encourage Education and Diagnosis of Hereditary Angioedema Through Discussion of Family History

- For Every Family Tree Created, ViroPharma Will Donate $25, up to $5,000, to the U.S. Hereditary Angioedema Association (HAEA) to Support HAE Day -

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United We Stand Strong!

HAEi cares about you. We encourage patients to get organized - because "United We Stand Strong".

HAE International - Thumb 7HAE International - Thumb 7Become a National Member Organization (NMO). We are here to help you in founding a National Member Organization. Follow our step-by-step model. It doesn't have to be a difficult task creating the best foundation for patients in your country. Contact us for more information here

HAE International - Thumb 4HAE International - Thumb 4

Starting a National Patient Group (NPG). If you are interested in doing more around HAE - but don't feel that starting a full NMO is the right option here and now. You should maybe consider becoming a contact patient (NPG) for your country. Contact us here

Both NMO's and NPG's enjoy free membership of HAEi. Also we can help you host your country specific website under the global umbrella of HAEi.

Events

Fri, 2012-05-18 08:00 - Sun, 2012-05-20 12:00

2012 HAE Global Conference

Venue:Scandic Hotel Sydhavnen, Copenhagen, Denmark
Language:English

HAE GLOBAL CONFERENCEHAE GLOBAL CONFERENCE

HAEi is delighted to invite patients, care givers, health care professionals and industry representatives to this biannual first true global conference, where this year's theme is "Advocacy and Access".

We have prepared some VERY ATTRACTIVE conference packages for all delegates.

We expect participation from all over the world.

Read more on the 2012 HAE Global Conference website

 

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Wed, 2012-05-16 00:01 - 23:59

2012 HAE Awareness Day

Venue: All over the World!
Language: All languages

HAEDAYHAEDAYPlease have a look at www.haeday.org for more information about this first ever dedicated awareness day for hereditary angioedema (HAE). Find inspiration for national/regional events as well as an overview of planned activities on the hae day website.

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Fri, 2012-03-02 08:00 - Tue, 2012-03-06 17:00

AAAAI 2012 Annual Meeting

Venue: Orange County Convention Center, Orlando, Florida, USA
Language: English

The AAAI Annual Meeting is the world's premier gathering of allergy and immunology experts. Attendees include clinicians, academicians, allied health professionals and others interested in allergic and immunologic disease.

The 2012 meeting will take place from March 2 - 6, in Orlando, Florida. We look forward to seeing you in Orlando. Read more about the conference here

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HAE Global Community

Be part of the HAEi Community

HAEi is here to help you. Therefore we have created the HAEi Community that gives you all the bells and whistles you know from other social media (such as Facebook) and even a very sophisticated Forum, where you can discuss with fellow HAE patients and care givers. The only difference is - that here your information stays safe - and will only be shared with other HAE patients and care givers. If you are a HAE patient or directly related to a HAE patient we urge you to register today - and become an important member of our community

Help yourself and stay updated by registering already today - then you will be the first to know.....

Go to Registration page

Do you have Questions?
You can find answers on our FAQ-Page or
send us an e-mail to: info@haei.org
 or go to the contact form page

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HAEi is a proud supporter of EURORDIS/NORD Rare Disease Day

RDD logoRDD logo

HAEDAYHAEDAYLook out for the first ever HAE Awareness Day on 16 May 2012


www.haeday.org