News

Thu, 2013-05-16
Happy hae day :-)

The hae day :-) annual awareness day for HAE takes place today, May 16, 2013.

You will find a lot more information about the awareness day at www.haeday.org, www.facebook.com/haeday, www.twitter.com/haeday and www.youtube.com/haedaychannel –and you can follow the work of the global HAE organization at www.haei.org.

read on
Thu, 2013-05-16
Dyax HAE Allies℠ Awards Program Launches on Second Annual HAE Day

BURLINGTON, Mass.--(BUSINESS WIRE)-- To mark the second annual Hereditary Angioedema (HAE) Day, Dyax Corp. today announced the launch of HAE Allies, a new program recognizing the physicians, nurses, family members and friends who support HAE patients in their efforts to live life to the fullest.

read on
Wed, 2013-04-17
Pharming And Santarus Announce Submission Of Ruconest Biologics License Application To FDA

LEIDEN, The Netherlands and SAN DIEGO, Calif. (April 17, 2013.) Pharming Group NV (NYSE Euronext: PHARM) and Santarus, Inc. (NASDAQ: SNTS) today announced the submission of a Biologics License Application (BLA) to the U.S. Food and Drug Administration (FDA) to obtain marketing approval for RUCONEST® (recombinant human C1 esterase inhibitor) 50 U/kg, an investigational drug for the treatment of acute angioedema attacks in patients with hereditary angioedema (HAE).

read on
Tue, 2013-04-16
CSL Behring Receives European Health Authorities’ Approval of Berinert® for Short-Term Prophylaxis in Adults and Children

Expanded label approved in 23 European countries for treatment and pre-procedure prevention of acute episodes of hereditary angioedema

MARBURG, Germany, 16 April, 2013 – CSL Behring today announced that European health authorities have approved an extended use of Berinert®, a C1-esterase inhibitor (C1-INH) concentrate, for pre-procedure prevention (short-term prophylaxis) of acute episodes of hereditary angioedema (HAE), in adult and pediatric patients undergoing medical, dental or surgical procedures.

HAE is a rare, serious and sometimes life-threatening genetic disorder.

read on
Wed, 2013-04-10
A global awareness day for a life-threatening condition

Annual global awareness initiative aims to unite and empower HAE patients and health care professionals to learn about the disease and advocate for improved diagnosis and care.

April 10, 2013: On May 16, 2013 patient organizations throughout the globe will hold events, meet-ings, and fundraisers to support the global awareness day for the life threatening condition Hereditary Angioedema (HAE).

read on

Teaser 4, 2nd row left, in news section

United We Stand Strong!

HAEi cares about you. We encourage patients to get organized - because "United We Stand Strong".

HAE International - Thumb 7HAE International - Thumb 7Become a National Member Organization (NMO). We are here to help you in founding a National Member Organization. Follow our step-by-step model. It doesn't have to be a difficult task creating the best foundation for patients in your country. Contact us for more information here

HAE International - Thumb 4HAE International - Thumb 4

Starting a National Patient Group (NPG). If you are interested in doing more around HAE - but don't feel that starting a full NMO is the right option here and now. You should maybe consider becoming a contact patient (NPG) for your country. Contact us here

Both NMO's and NPG's enjoy free membership of HAEi. Also we can help you host your country specific website under the global umbrella of HAEi.

Events

Thu, 2013-05-23 12:00 - Sun, 2013-05-26 12:00

8th C1-Inhibitor Deficiency Workshop

Venue: Danubius Thermal Hotel Margitsziget, H-1133 Budapest, Hungary
Language: English

Hungary welcomes you to the 8th C1-Inhibitor Deficiency Workshop will be held in Budapest in 2013.

For more information please visit the website here

 ..continue
Thu, 2013-05-16 (All day)

2013 hae day :-)

On 16 May 2013 patient organizations throughout the globe will hold events, meetings, and fundraisers to support the global awareness day hae day :-)

 ..continue
Sat, 2013-05-04 09:00 - 16:00

Australasian 2013 Annual Patient Meeting

Venue: Rydges, South Bank, Brisbane, Queensland, Australia
Language: English

HAE Australasia Ltd is pleased to invite you to the patient organisation’s second patient meeting. The event will provide you with an opportunity to hear from HAE experts and to meet others who may share similar HAE experiences. It will also be a good opportunity to meet with the HAE Australasia board members and discuss how you could help spread awareness of HAE in Australia & New Zealand.

 ..continue

Homepage Teaser 6, 2nd row right

HAE Global Community

Be part of the HAEi Community

HAEi is here to help you. Therefore we have created the HAEi Community that gives you all the bells and whistles you know from other social media (such as Facebook) and even a very sophisticated Forum, where you can discuss with fellow HAE patients and care givers. The only difference is - that here your information stays safe - and will only be shared with other HAE patients and care givers. If you are a HAE patient or directly related to a HAE patient we urge you to register today - and become an important member of our community

Help yourself and stay updated by registering already today - then you will be the first to know.....

Go to Registration page

Do you have Questions?
You can find answers on our FAQ-Page or
send us an e-mail to: info@haei.org
 or go to the contact form page

Experiencing browser problems?

Our website is working properly on most web browsers. However, we know that the site will not perform correctly on Microsoft Internet Explorer version 6 and earlier! So if you are using Internet Explorer from Microsoft please ensure that you have version 7 or higher!

See the video from the 2012 HAE Global Conference in Copenhagen

Click here

HAEDAYHAEDAYLook out for next hae day :-) on 16 May 2013


www.haeday.org