HAEi is the International Patient Organization for C1-Inhibitor Deficiencies
Our organization is a global non-profit network of patient associations and we are dedicated to raising awareness of C1-inhibitor deficiencies around the world.
We aim to improve time to diagnosis and facilitate access to and reimbursement of life saving HAE therapies.
Suffering from HAE? You are not alone!
Members of the HAEi family
Read the latest news from HAEi
>> See list of all news here Steen Bjerre
BioCryst Pharmaceuticals, Inc. has completed enrollment in OPuS-2 (Oral ProphylaxiS-2), a blinded, randomized, […]
The U.S. Food and Drug Administration (FDA) has granted 12 […]
The European Medicines Agency (EMA) Committee for Orphan Medicinal Products (COMP) has […]
Check out HAEi events around the world
Denver Marriott Tech Center
Denver CO United States
Oct 9, 2015 - Oct 11, 2015 at 10:00 am
COEX Convention and Exhibition Center
Seoul South Korea
Oct 14, 2015 - Oct 17, 2015 at 10:00 am
Sinatur Hotel Storebælt
Nov 6, 2015 - Nov 8, 2015 at 6:00 pm
>> See list of all events here
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HAEi on social media
You can follow HAEi on a number of social media platforms where we will keep you updated on the latest news regarding HAE.
Find HAE “Points of Interest” relevant to you
Missed opportunities due to HAE
It’s important to get the right treatment to get the most out of life
Patients report that HAE has hindered their education and work opportunities.
Getting the right treatment will allow you to live a normal life without missing out on education and job opportunities.
Read the stories of HAE patients from around the world
HAE patients from all corners of the world share their stories, inspiring other patients and proving that it is in fact possible to lead a close to normal life with HAE.
Reach out to HAEi
At HAEi we are constantly focusing on how to improve the awareness of HAE, and how to create a better environment for timely diagnosis and access to therapies.
Your experience and your story can help us. Reach out to us!
Your personal story, an invitation to your community’s event, local or national news, feedback, questions …
All that and much more is always welcome in HAEi’s mailbox.
So please, send us a message, if you have anything you want to share with us.
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