HAEi is the International Patient Organization for C1-Inhibitor Deficiencies
Our organization is a global non-profit network of patient associations and we are dedicated to raising awareness of C1-inhibitor deficiencies around the world.
We aim to improve time to diagnosis and facilitate access to and reimbursement of life saving HAE therapies.
Suffering from HAE? You are not alone!
Members of the HAEi family
Read the latest news from HAEi
>> See list of all news here Steen Bjerre
Dyax Corp. presented two oral presentations describing clinical data from […]
At the presentation of the BioCryst Pharmaceuticals, Inc. financial results […]
Shire will acquire Dyax Corp., the publicly traded biotechnology company primarily […]
Check out HAEi events around the world
NH Hotel Neue Messe
Nov 28, 2015 at 9:00 am - 4:00 pm
May 16, 2016 at All Day
Hotel Auditorium Madrid
May 19, 2016 - May 22, 2016 at All Day
>> See list of all events here
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HAEi on social media
You can follow HAEi on a number of social media platforms where we will keep you updated on the latest news regarding HAE.
Find HAE “Points of Interest” relevant to you
Missed opportunities due to HAE
It’s important to get the right treatment to get the most out of life
Patients report that HAE has hindered their education and work opportunities.
Getting the right treatment will allow you to live a normal life without missing out on education and job opportunities.
Read the stories of HAE patients from around the world
HAE patients from all corners of the world share their stories, inspiring other patients and proving that it is in fact possible to lead a close to normal life with HAE.
Reach out to HAEi
At HAEi we are constantly focusing on how to improve the awareness of HAE, and how to create a better environment for timely diagnosis and access to therapies.
Your experience and your story can help us. Reach out to us!
Your personal story, an invitation to your community’s event, local or national news, feedback, questions …
All that and much more is always welcome in HAEi’s mailbox.
So please, send us a message, if you have anything you want to share with us.
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