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HAEi - International Patient Organization for C1 Inhibitor Deficiencies - is a global non-profi organization dedicated to raising awareness of C1 inhibitor deficiencies around the world.

Our purpose is to join the efforts and experience of the global HAE community to achieve optimal standards of care and treatment for HAE patients.

HAEi is registered in the Meurthe et Moselle département prefecture under the number 015857 with the following address: 12 rue des 4 Églises, 54000 Nancy, France.

The daily operation is handled by the Executive Director of HAEi, Mr. Henrik Boysen - more information

The operation of HAEi is controlled and directed by the Executive Committee of HAEi - more information

Bank details of HAEi

Bank: BNP Paribas Orsay
Account No.: 000 100 735 65
IBAN: FR76 3000 4000 8600 0100 7356 568
SWIFT/BIC: BNPAFRPPMAS

Sidebar: 

About

News

Wed, 2010-08-25

Pharming Plans Submission Rhucin BLA to US FDA End 2010
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Tue, 2010-07-06

Dyax Announces Marketing Authorization Application for DX-88 (ecallantide) Validated by European Medicines Agency
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Tue, 2010-07-06

Pharming And Sanofi Chimie Sign Manufacturing Agreement For The Drug Substance Of Ruconest
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Thu, 2010-06-24

Pharming Receives Positive Opinion From European Medicines Agency On Rhucin
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Mon, 2010-06-21

ViroPharma Files Prior Approval Supplement (PAS) for Cinryze™ (C1 Esterase Inhibitor [human]) Industrial Scale Manufactoring
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Mon, 2010-06-21

Dyax and Sigma-Tau Announce Partnership to Develop and Commercialize Subcutaneous DX-88 (ecallantide) for Hereditary Angioedema and Other Indications in Europe, North Africa, Middle East and Russia
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Newsletter Teaser ( In News Section on Homepage )

Newsletter

Make sure to stay updated. HAEi will keep you informed when you sign up for our newsletter.

Sign up for HAEi Newsletter and register at the same time.

Join our Facebook group - and follow HAEi on Twitter

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Events

Fri, 2011-03-18 08:00 - Tue, 2011-03-22 18:00

AAAAI 2011 Annual Meeting

Venue: TBA, San Francisco, USA
Language: English

The 2011 Annual Meeting will take place from March 18 - 22, in San Francisco, CA.

Please visit the AAAAI 2011 website for more information.

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Sun, 2010-12-05 09:00 - Wed, 2010-12-08 16:00

WAO International Scientific Conference

Venue: Dubai International Convention and Exhibition Centre, Dubai, United Arab Emirates
Language: English

The 1st WAO International Scientific Conference will take place in Dubai, the second largest of the seven emirates that make up the United Arab Emirates.

Please visit the WISC 2010 website for more information

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Wed, 2010-10-06 07:30 - Sat, 2010-10-09 23:00

ESID 2010

Venue: İstanbul Lütfi Kırdar Uluslararası Kongre ve Sergi Sarayı, Istanbul, Turkey
Language: English

ESID 2010 is taking place from 6 October until 9 October 2010 in Istanbul.

Please visit the ESID website for more information.

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Homepage Teaser 6, 2nd row right

HAE Global Community

Be part of the community

HAEi is here to help you. Therefore we will introduce a number of services in the future. Right now we will have newsletters, newsmails and questionnaires. But you will see our site evolve into a complete community aiming to help HAE patients around the world.

Help yourself and stay updated by registering already today - then you will be the first to know.....

Go to Registration page

Do you have Questions?
You can find answers on our FAQ-Page or
send us an e-mail to: info@haei.org
 or go to the contact form page

Experiencing browser problems?

Our website is working properly on most web browsers. However, we know that the site will not perform correctly on Microsoft Internet Explorer version 6 and earlier! So if you are using Internet Explorer from Microsoft please ensure that you have version 7 or higher!

Online Symptom Diary for Patients with Hereditary Angioedema

Our Online Symptom Diary for Patients with Hereditary Angioedema is still available. You can log into the diary through this link

Online Symptom Diary

Please observe that you will leave www.haei.org when clicking the link.