Mission and Vision of HAE International

Our Mission

HAEI is established to promote co-operation, co-ordination and information sharing between HAE Specialists and National HAE Patient Associations in order to promote and facilitate the availability of effective HAE (and other angioedema due to C1 inhibitor deficiency) diagnosis and management throughout the world.

Aims and Objectives

In support of its mission HAE International (HAEI) will focus on:

I. The development and support of National Member Organizations (NMOs) throughout the world.
II. The dissemination of information to NMOs, enhanced communication with medical professionals, appropriate decision makers and the medical industry.
III. The promotion of international guidelines for standards of care for HAE patients throughout the world to ensure every patient has access to timely diagnosis and effective care.
IV. The maintenance of an HAEI website to serve as an educational/informative online resource for the HAE global community.
V. The organization of international workshops for interaction among the entire HAE community - medical, scientific and patients.
VI. The promotion of scientific and clinical research to facilitate the development of treatments for C1-INH deficiencies.

News

Wed, 2010-08-25

Pharming Plans Submission Rhucin BLA to US FDA End 2010
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Tue, 2010-07-06

Pharming And Sanofi Chimie Sign Manufacturing Agreement For The Drug Substance Of Ruconest
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Tue, 2010-07-06

Dyax Announces Marketing Authorization Application for DX-88 (ecallantide) Validated by European Medicines Agency
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Thu, 2010-06-24

Pharming Receives Positive Opinion From European Medicines Agency On Rhucin
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Mon, 2010-06-21

Dyax and Sigma-Tau Announce Partnership to Develop and Commercialize Subcutaneous DX-88 (ecallantide) for Hereditary Angioedema and Other Indications in Europe, North Africa, Middle East and Russia
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Mon, 2010-06-21

ViroPharma Files Prior Approval Supplement (PAS) for Cinryze™ (C1 Esterase Inhibitor [human]) Industrial Scale Manufactoring
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Newsletter Teaser ( In News Section on Homepage )

Newsletter

Make sure to stay updated. HAEi will keep you informed when you sign up for our newsletter.

Sign up for HAEi Newsletter and register at the same time.

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Events

Fri, 2011-03-18 08:00 - Tue, 2011-03-22 18:00

AAAAI 2011 Annual Meeting

Venue: TBA, San Francisco, USA
Language: English

The 2011 Annual Meeting will take place from March 18 - 22, in San Francisco, CA.

Please visit the AAAAI 2011 website for more information.

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Sun, 2010-12-05 09:00 - Wed, 2010-12-08 16:00

WAO International Scientific Conference

Venue: Dubai International Convention and Exhibition Centre, Dubai, United Arab Emirates
Language: English

The 1st WAO International Scientific Conference will take place in Dubai, the second largest of the seven emirates that make up the United Arab Emirates.

Please visit the WISC 2010 website for more information

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Wed, 2010-10-06 07:30 - Sat, 2010-10-09 23:00

ESID 2010

Venue: İstanbul Lütfi Kırdar Uluslararası Kongre ve Sergi Sarayı, Istanbul, Turkey
Language: English

ESID 2010 is taking place from 6 October until 9 October 2010 in Istanbul.

Please visit the ESID website for more information.

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Homepage Teaser 6, 2nd row right

HAE Global Community

Be part of the community

HAEi is here to help you. Therefore we will introduce a number of services in the future. Right now we will have newsletters, newsmails and questionnaires. But you will see our site evolve into a complete community aiming to help HAE patients around the world.

Help yourself and stay updated by registering already today - then you will be the first to know.....

Go to Registration page

Do you have Questions?
You can find answers on our FAQ-Page or
send us an e-mail to: info@haei.org
 or go to the contact form page

Experiencing browser problems?

Our website is working properly on most web browsers. However, we know that the site will not perform correctly on Microsoft Internet Explorer version 6 and earlier! So if you are using Internet Explorer from Microsoft please ensure that you have version 7 or higher!

Online Symptom Diary for Patients with Hereditary Angioedema

Our Online Symptom Diary for Patients with Hereditary Angioedema is still available. You can log into the diary through this link

Online Symptom Diary

Please observe that you will leave www.haei.org when clicking the link.