News

Wed, 2010-08-25
Pharming Plans Submission Rhucin BLA to US FDA End 2010

LEIDEN, The Netherlands, August 25, 2010. Biotech company Pharming Group NV (“Pharming” or “the Company”) (NYSE Euronext: PHARM) today announced that it intends to submit the Biologic License Application (BLA) to the US Food and Drug Administration (FDA) to obtain marketing approval for Rhucin® for the treatment of acute angioedema attacks in patients with Hereditary Angioedema (HAE). Following pre-BLA discussions with the FDA, Pharming is preparing the BLA dossier for submission towards the end of this year but no later than January 2011.

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Tue, 2010-07-06
Pharming And Sanofi Chimie Sign Manufacturing Agreement For The Drug Substance Of Ruconest

LEIDEN, the Netherlands and Aramon, France, July 6th, 2010. Biotech company Pharming Group NV (“Pharming”) (NYSE Euronext: PHARM) and Sanofi Chimie, wholly owned subsidiary of sanofi-aventis (NYSE Euronext: SAN, NYSE: SNY) announced today the signing of a toll manufacturing agreement to increase the production capacity of the drug substance of RuconestTM, which will improve RuconestTM cost of goods and competitiveness and will put Pharming in the position to satisfy future global demand.

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Tue, 2010-07-06
Dyax Announces Marketing Authorization Application for DX-88 (ecallantide) Validated by European Medicines Agency

CAMBRIDGE, Mass., Jul 06, 2010 (BUSINESS WIRE) -- Dyax Corp. (NASDAQ: DYAX) announced today that the European Medicines Agency (EMA) has completed its validation process for the Marketing Authorization Application (MAA) for potential approval to market DX-88 (ecallantide) in the European Union (EU). The completion of this validation process signifies that the formal scientific review of the MAA has begun. DX-88 (ecallantide) has been approved by the U.S.

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Thu, 2010-06-24
Pharming Receives Positive Opinion From European Medicines Agency On Rhucin

Product name in Europe changed to Ruconest

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Mon, 2010-06-21
Dyax and Sigma-Tau Announce Partnership to Develop and Commercialize Subcutaneous DX-88 (ecallantide) for Hereditary Angioedema and Other Indications in Europe, North Africa, Middle East and Russia

Dyax Receives $5M Upfront Payment

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United We Stand Strong!

HAEi cares about you. We encourage patients to get organized - because "United We Stand Strong".

HAE International - Thumb 7HAE International - Thumb 7Become a National Member Organization (NMO). We are here to help you in founding a National Member Organization. Follow our step-by-step model. It doesn't have to be a difficult task creating the best foundation for patients in your country. Contact us for more information here

HAE International - Thumb 4HAE International - Thumb 4

Starting a National Patient Group (NPG). If you are interested in doing more around HAE - but don't feel that starting a full NMO is the right option here and now. You should maybe consider becoming a contact patient (NPG) for your country. Contact us here

Both NMO's and NPG's enjoy free membership of HAEi. Also we can help you host your country specific website under the global umbrella of HAEi.

Events

Fri, 2011-03-18 08:00 - Tue, 2011-03-22 18:00

AAAAI 2011 Annual Meeting

Venue: TBA, San Francisco, USA
Language: English

The 2011 Annual Meeting will take place from March 18 - 22, in San Francisco, CA.

Please visit the AAAAI 2011 website for more information.

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Sun, 2010-12-05 09:00 - Wed, 2010-12-08 16:00

WAO International Scientific Conference

Venue: Dubai International Convention and Exhibition Centre, Dubai, United Arab Emirates
Language: English

The 1st WAO International Scientific Conference will take place in Dubai, the second largest of the seven emirates that make up the United Arab Emirates.

Please visit the WISC 2010 website for more information

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Wed, 2010-10-06 07:30 - Sat, 2010-10-09 23:00

ESID 2010

Venue: İstanbul Lütfi Kırdar Uluslararası Kongre ve Sergi Sarayı, Istanbul, Turkey
Language: English

ESID 2010 is taking place from 6 October until 9 October 2010 in Istanbul.

Please visit the ESID website for more information.

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Homepage Teaser 6, 2nd row right

HAE Global Community

Be part of the community

HAEi is here to help you. Therefore we will introduce a number of services in the future. Right now we will have newsletters, newsmails and questionnaires. But you will see our site evolve into a complete community aiming to help HAE patients around the world.

Help yourself and stay updated by registering already today - then you will be the first to know.....

Go to Registration page

Do you have Questions?
You can find answers on our FAQ-Page or
send us an e-mail to: info@haei.org
 or go to the contact form page

Experiencing browser problems?

Our website is working properly on most web browsers. However, we know that the site will not perform correctly on Microsoft Internet Explorer version 6 and earlier! So if you are using Internet Explorer from Microsoft please ensure that you have version 7 or higher!

Online Symptom Diary for Patients with Hereditary Angioedema

Our Online Symptom Diary for Patients with Hereditary Angioedema is still available. You can log into the diary through this link

Online Symptom Diary

Please observe that you will leave www.haei.org when clicking the link.