Events

Fri, 2010-06-18 20:00 - Sun, 2010-06-20 08:00

HAEi - Patient Advocacy Forum

Venue: Hilton Reading, Reading, United Kingdom
Language: English

BY INVITATION ONLY!

HAEi is hosting the first HAEi Patient Advocacy Forum in London, where we are capturing and sharing information from approx. 12 countries (mostly European) about what the actual state of management of HAE is in Europe.

Outcome of the meeting will hopefully be a patient driven "Call to Action" document to ensure better awareness of HAE and better/easier access to acute attack treatment of HAE in Europe.

Agenda and logistics will be send directly to all confirmed participants. There will be more information about the outcome of the workshop on this website.

News

Wed, 2010-08-25

Pharming Plans Submission Rhucin BLA to US FDA End 2010
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Tue, 2010-07-06

Dyax Announces Marketing Authorization Application for DX-88 (ecallantide) Validated by European Medicines Agency
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Tue, 2010-07-06

Pharming And Sanofi Chimie Sign Manufacturing Agreement For The Drug Substance Of Ruconest
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Thu, 2010-06-24

Pharming Receives Positive Opinion From European Medicines Agency On Rhucin
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Mon, 2010-06-21

ViroPharma Files Prior Approval Supplement (PAS) for Cinryze™ (C1 Esterase Inhibitor [human]) Industrial Scale Manufactoring
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Mon, 2010-06-21

Dyax and Sigma-Tau Announce Partnership to Develop and Commercialize Subcutaneous DX-88 (ecallantide) for Hereditary Angioedema and Other Indications in Europe, North Africa, Middle East and Russia
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Facebook logo SFacebook logo SOur Facebook group is open for everybody and all content is public. The main purpose with our Facebook participation is to further raise the awareness of HAE globally.

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HAEi is here to help you. Therefore we will introduce a number of services in the future. Right now we will have newsletters, newsmails and questionnaires. But you will see our site evolve into a complete community aiming to help HAE patients around the world.

Help yourself and stay updated by registering already today - then you will be the first to know.....

Go to Registration page

Do you have Questions?
You can find answers on our FAQ-Page or
send us an e-mail to: info@haei.org
 or go to the contact form page

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