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Welcome To Our Site

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Info

HAEI - International Patient Organization for C1-Inhibitor Deficiencies

- is a global organization dedicated to raising awareness of C1 inhibitor deficiencies around the world. It is a non-profit international network of national HAE patient Associations.

HAEI is established to promote co-operation, co-ordination and information sharing between HAE Specialists and National HAE Patient Associations in order to help facilitate the availability of effective diagnosis and management of C1 inhibitor deficiencies throughout the world.

Learn more about our Organisation HAEi
Read more about the HAE disease

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Interactive Country Sites

HAE International World MapHAE International World Map

for detailed Information about national organizations and groups, care centers, hospitals, physicians and more.

News

Tue, 2010-07-06

Dyax Announces Marketing Authorization Application for DX-88 (ecallantide) Validated by European Medicines Agency
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Tue, 2010-07-06

Pharming And Sanofi Chimie Sign Manufacturing Agreement For The Drug Substance Of Ruconest
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Thu, 2010-06-24

Pharming Receives Positive Opinion From European Medicines Agency On Rhucin
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Mon, 2010-06-21

ViroPharma Files Prior Approval Supplement (PAS) for Cinryze™ (C1 Esterase Inhibitor [human]) Industrial Scale Manufactoring
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Mon, 2010-06-21

Dyax and Sigma-Tau Announce Partnership to Develop and Commercialize Subcutaneous DX-88 (ecallantide) for Hereditary Angioedema and Other Indications in Europe, North Africa, Middle East and Russia
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Newsletter

Make sure to stay updated. HAEi will keep you informed when you sign up for our newsletter.

Sign up for HAEi Newsletter and register at the same time.

Join our Facebook group - and follow HAEi on Twitter

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Events

Fri, 2010-06-18 20:00 - Sun, 2010-06-20 08:00

HAEi - Patient Advocacy Forum

Venue: Hilton Reading, Reading, United Kingdom
Language: English

BY INVITATION ONLY!

HAEi is hosting the first HAEi Patient Advocacy Forum in London, where we are capturing and sharing information from approx. 12 European countries about what the actual state of management of HAE is in Europe.

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Sat, 2010-06-05 10:00 - Wed, 2010-06-09 13:30

EAACI 2010

Venue: ExCeL, London, United Kingdom
Languages: English

The European Academy of Allergy and Clinical Immunology welcomes you to a comprehensive series of symposia and workshop at the EAACI 2010 in London, United Kingdom.

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HAE Global Community

Be part of the community

HAEi is here to help you. Therefore we will introduce a number of services in the future. Right now we will have newsletters, newsmails and questionnaires. But you will see our site evolve into a complete community aiming to help HAE patients around the world.

Help yourself and stay updated by registering already today - then you will be the first to know.....

Go to Registration page

Do you have Questions?
You can find answers on our FAQ-Page or
send us an e-mail to: info@haei.org
 or go to the contact form page

Experiencing browser problems?

Our website is working properly on most web browsers. However, we know that the site will not perform correctly on Microsoft Internet Explorer version 6 and earlier! So if you are using Internet Explorer from Microsoft please ensure that you have version 7 or higher!

Online Symptom Diary for Patients with Hereditary Angioedema

Our Online Symptom Diary for Patients with Hereditary Angioedema is still available. You can log into the diary through this link

Online Symptom Diary

Please observe that you will leave www.haei.org when clicking the link.