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Welcome To Our Site

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Info

HAEI - International Patient Organization for C1-Inhibitor Deficiencies

- is a global organization dedicated to raising awareness of C1 inhibitor deficiencies around the world. It is a non-profit international network of national HAE patient Associations.

HAEI is established to promote co-operation, co-ordination and information sharing between HAE Specialists and National HAE Patient Associations in order to help facilitate the availability of effective diagnosis and management of C1 inhibitor deficiencies throughout the world.

Learn more about our Organisation HAEi
Read more about the HAE disease

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Interactive Country Sites

HAE International World MapHAE International World Map

for detailed Information about national organizations and groups, care centers, hospitals, physicians and more.

News

Tue, 2012-01-24

New Data Published On Ruconest's Effect On Blood Clotting Parameters During HAE Attacks

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Fri, 2012-01-13

Health Canada Grants Priority Review Status For New Drug Submission (NDS) For Cinryze™ (C1 Inhibitor [human])
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Tue, 2012-01-03

CSL Behring Receives FDA Approval of Expanded Label on Berinert® for Self-administration and Treatment of Acute Laryngeal Attacks of Hereditary Angioedema
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Wed, 2011-12-07

Santarus And Pharming Announce Oral Presentations Of Retrospective Analyses Of Data From Rhucin Clinical Program At World Allergy Congress
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Tue, 2011-12-06

ViroPharmaI and Halozyme Therapeutics Announce Positive Data From Initial Phase 2 Assessment of Subcutaneous Cinryze® (C1 Esterase Inhibitor [Human]) with Hyaluronidase (rHuPH20)

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Tue, 2011-09-13

ViroPharma and Halozyme Therapeutics Announce Initiation of Phase 2 Evaluation of Subcutaneous Delivery of Cinryze® (C1 Esterase Inhibitor [Human]) with Hyaluronidase (rHuPH20)
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Newsletter

Make sure to stay updated. HAEi will keep you informed when you sign up for our newsletter.

Sign up for HAEi Newsletter and register at the same time.

Join our Facebook group - and follow HAEi on Twitter

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Events

Thu, 2012-05-17 08:00 - Sun, 2012-05-20 12:00

2012 HAE Global Conference

Venue:Scandic Hotel Sydhavnen, Copenhagen, Denmark
Language:English

HAE GLOBAL CONFERENCEHAE GLOBAL CONFERENCEHAEi is delighted to invite patients, care givers, industry representatives and health care professionals to this biannual global conference, where this year's theme is "Advocacy and Access".

More information will soon be available.

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Wed, 2012-05-16 00:01 - 23:59

2012 HAE Awareness Day

Venue: All over the World!
Language: All languages

HAEDAYHAEDAYPlease have a look at www.haeday.org for more information about this first ever dedicated awareness day for hereditary angioedema (HAE). Find inspiration for national/regional events as well as an overview of planned activities on the hae day website.

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Fri, 2012-03-02 08:00 - Tue, 2012-03-06 17:00

AAAAI 2012 Annual Meeting

Venue: Orange County Convention Center, Orlando, Florida, USA
Language: English

The AAAI Annual Meeting is the world's premier gathering of allergy and immunology experts. Attendees include clinicians, academicians, allied health professionals and others interested in allergic and immunologic disease.

The 2012 meeting will take place from March 2 - 6, in Orlando, Florida. We look forward to seeing you in Orlando. Read more about the conference here

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HAE Global Community

Be part of the HAEi Community

HAEi is here to help you. Therefore we have created the HAEi Community that gives you all the bells and whistles you know from other social media (such as Facebook) and even a very sophisticated Forum, where you can discuss with fellow HAE patients and care givers. The only difference is - that here your information stays safe - and will only be shared with other HAE patients and care givers. If you are a HAE patient or directly related to a HAE patient we urge you to register today - and become an important member of our community

Help yourself and stay updated by registering already today - then you will be the first to know.....

Go to Registration page

Do you have Questions?
You can find answers on our FAQ-Page or
send us an e-mail to: info@haei.org
 or go to the contact form page

Experiencing browser problems?

Our website is working properly on most web browsers. However, we know that the site will not perform correctly on Microsoft Internet Explorer version 6 and earlier! So if you are using Internet Explorer from Microsoft please ensure that you have version 7 or higher!

HAEi is a proud supporter of EURORDIS/NORD Rare Disease Day

RDD logoRDD logo

HAEDAYHAEDAYLook out for the first ever HAE Awareness Day on 16 May 2012


www.haeday.org